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"Your Child Has Cancer"

  • Writer: Marisa Mulh
    Marisa Mulh
  • May 22, 2020
  • 2 min read

Updated: May 27, 2020

Wednesday morning we finally met our oncologist. She came prepared with our 28-week treatment plan and told us we would start THAT DAY with chemo.


She walked us through the prognosis, answered all of our questions, ranging from chemo side effects, living with one kidney, developmental setbacks, prognosis, etc.


The best thing that we heard was that "our expectations for her life should not be different now than they were before this tumor was found." Which was extremely reassuring.


But shit, our poor baby had already been through so much, and now she will have to endure SO much more, before this nightmare is over.


Following our meeting, we met with a social worker who gave us a book called "What to do when your child has cancer" and then we waited for them to mix her first batch of chemo therapy.


The nurse came in, dressed in full PPE to administer it. And our beautiful baby just laid there like an angel, as they inserted the cancer-killing chemicals through her port.


Following her chemo session, we were discharged from the hospital, and told that we would be back again the following Wednesday and every Wednesday there after for the next 28 weeks.


The first night and week after the first round of chemo was a nightmare. Poor baby was so uncomfortable which was likely a combo of pain and nausea and overall discomfort from her tumor.


There is no way to tell how she is feeling or what is bothering her, but our angel baby was not happy. No sleep, crying all night. It was miserable. By that Sunday/Monday, we started to see glimmers of our angel baby, she was calmer, happier, and sleeping "better."


But then Wednesday we went back for more chemo....

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2 Comments


Nicole Beckler
Nicole Beckler
May 24, 2020

Your daughter has fight in her and she will do it. Any time negative thoughts enter your mind, start thinking of something good... far away trips or pleasant thoughts to help push negative out of the mind. A mother, you, are stronger than you ever knew. Stay positive and be assured, she will beat this. STRONG...

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john.j.giardina
May 23, 2020

As a parent who has spent weeks inside hospitals for my older son, I can tell you that everything you’ve experienced is normal, it sucks, and it will be okay. My whole family sends our love and prayers and wishes that everything goes well for Laila and Marisa and Chris. God bless you all.

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