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  • Writer: Marisa Mulh
    Marisa Mulh
  • Jun 29, 2020
  • 2 min read

After a very long six days in the hospital, we were finally discharged on Saturday afternoon. Phew. It was amazing to go home, with Laila, knowing that the tumor is OUT! Relieved and exhausted, we took the weekend to lay low, at home, as a reunited family. And it felt so good. I am writing this one week post-surgery, and boy what a difference a week makes. A week ago right now, Chris and I were both an anxious mess, pacing around the hospital, awaiting the hourly updates from the OR. The sense of calm I have this week versus last week is immeasurable. Prior to our discharge, we also found out that her pathology came back CLEAR! Best news ever. They tested the lymph nodes and tissues that surrounded the tumor for cancer and all of it was clear. "Relieved” is truly an understatement. Many people have asked if "clear pathology" means we are done with treatment. Unfortunately, it does not. Next up, Laila will begin a five to seven straight days of radiation starting next Monday. Sadly, she will have to be put under for every session, everyday. But, first we take her in this Wednesday so they can run a simulation to make sure they know exactly where to place everything for next week.

Following radiation, chemo will resume (likely every week) until Thanksgiving (we hope). At this point, we believe the chemo and radiation are just precautionary - to be sure there aren’t any more cancer cells hiding inside her. Despite looking so small and frail, Laila continues to be a daily inspiration. She is beginning (and very determined) to crawl. And yesterday, for the first time since surgery, started to be her animated, smiley, giggly self again. She is also back to sleeping through the night which is amazing and another huge relief.


Thank you again, from the bottom of our hearts, to everyone who sent messages, texts, prayers, cards, gifts, flowers, balloons, food and everything else. As we've continued to say, all of your love and support has really helped all of us navigate through everything we've been facing. We couldn't be doing this without you and the unwavering generously you have bestowed on our family.

Radiation will definitely be a new adventure, but after going through surgery, bring it on!



 
 
 

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4 comentarios


gchesney47
gchesney47
29 jun 2020

My heart literally leapt for joy. Not sure I have experienced that before, but glad I now know how it feels! On the other hand, I have never been particularly squeamish, but the tumor picture emotion went exactly the other way. I can only share your joy that that thing, for lack of a better word, is out of your precious daughter. So happy for you, for her and intend to keep praying every day for her until she is pronounced totally healthy again. Hugs and kisses (virtual!) to each and every one of you four.

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Annabelle Rivera
Annabelle Rivera
29 jun 2020

Praise God ! So happy to hear this great news. May the weeks and months to follow continue to be filled with more great news and many many more blessings. ❤️🙏🏼

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Mayra Grandio
Mayra Grandio
29 jun 2020

Such great news! I’m sure she’ll have a full recovery and will beat any cancer cells out of her, she’s definitely a little warrior👌🏻❤️🙏🏻

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angiegarrod
29 jun 2020

I’m smiling ear to ear reading such a positive update on Laila’s surgery and pathology results. I know there is still a road of treatment head, but wow some milestones have been met this last week. Sooo very pleased for Laila and all of her dear family. 💕🤗 Marisa, you and Chris are also warriors. x

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